EVENTS
It is important to raise awareness for diseases that we care for which are thought to be rare but, are really just rarely heard of.
CURRENT EVENTS
ZebraTalks Podcast: Living Your Best Bendy Life with Host, Libby Hinsley
Episode 29: POTS Diagnosis and Treatment with Dr. David Saperstein
02/24/2025 – Episode Info: In this episode of Zebra Talks, Libby welcomes Dr. David Saperstein, Director of the Center for Complex Neurology, EDS, and POTS in Phoenix, Arizona. Dr. Saperstein shares his journey into specializing in EDS and POTS, the complexities of diagnosing and treating POTS, and the importance of staying curious and open-minded in medical practice. They discuss the challenges of diagnosing POTS, the importance of thorough testing, and various treatment strategies, including the critical role of salt and water intake. Dr. Saperstein also emphasizes the need for flexibility in treatment plans to better meet individual patient needs. Tune in to gain valuable insights into managing these complex conditions and hear about Dr. Saperstein’s innovative approaches. 00:00 Introduction to Zebra Talks 00:35 Meet Dr. David Saperstein 01:45 Dr. Saperstein’s Journey into EDS and POTS 03:47 Challenges in Diagnosing and Treating POTS 10:00 Understanding POTS and Its Complexities 18:29 Diagnostic Criteria and Testing for POTS 31:06 Treatment Strategies for POTS 36:54 Managing POTS with Lifestyle Changes 41:36 Conclusion and Contact Information.
Check out the Podcast Now:🎙️🎧 Listen Now!
PAST EVENTS
Dr. David Saperstein will be part of the GBS | CIDP “Speaker Series”.
GBS | CIDP Foundation International is hosting a conversation with Dr. David Saperstein to review the available treatment options for GBS, CIDP, MMN, and variants patients. This conversational webinar will provide an overview of medicines/drugs typically used to treat patients with these conditions. Please note that they cannot provide specific feedback on individual cases; these webinars are for educational purposes only.
𝐖𝐡𝐨 𝐒𝐡𝐨𝐮𝐥𝐝 𝐀𝐭𝐭𝐞𝐧𝐝:
GBS, CIDP, MMN, and variants patients and their loved ones can benefit from this webinar. Whether someone is newly diagnosed and looking to better understand treatment options OR someone who has been living with a current treatment plan and is curious about other options, most community members may benefit from this information.
Dr. David Saperstein will be speaking at
Dysautonomia International’s 12th Annual Conference!
This is the world’s largest conference on autonomic disorders.
𝐖𝐡𝐨 𝐒𝐡𝐨𝐮𝐥𝐝 𝐀𝐭𝐭𝐞𝐧𝐝:
It is set to be a fantastic weekend of educational seminars and engaging speakers bringing together patients, caregivers, researchers, and clinicians to share information on the latest research on autonomic disorders, diagnostic techniques, pharmacological and non-pharmacological treatment approaches, practical tips, information on related medical conditions, advocacy training, and fun social activities!
CONFERENCE DATES:
June 28-30, 2024
CONFERENCE VENUE:
Loews Chicago O’Hare Hotel
5300 N River Rd.
Rosemont, IL 60018
Event Registration:✍️ Register Now! “
2023 AANEM Annual Meeting Registration is now open for physicians, technologists, and other healthcare professionals.
Event includes Sessions, Workshops, Social Events, and more! Join us and AANEM (American Association of Neuromuscular & Electrodiagnostic Medicine) to learn all about new science and findings in Neuromuscular Medicine & EDX Medicine.
- POTS (postural orthostatic tachycardia syndrome)
- Long Covid
- Small Fiber Neuropathy
Dr. David Saperstein will be on the “Ask the Experts” panel.
The GBS | CIDP Foundation International’s Symposium is a three-day educational event including sessions led by our world-renowned team of medical and wellness professionals, specializing in healthcare for rare neurological conditions. Some of the many sessions you will see are: Residual Management: Pain, Fatigue, and Mobility, How to Talk to Your Doctor and Advocate for Yourself, Understanding Long-Term Recovery Outcomes and so much more…
Not only does the symposium provide the opportunity to learn more about your condition, but it provides patients and caregivers the chance to connect with individuals who understand the challenges they are going through in their everyday lives.
Do You Have a Question About EDS – Ehlers-Danlos Syndrome(s), HSD – Hypermobility Spectrum Disorder, CM – Chiari Malformation, or CCI – Cranial Cervical Instability? 𝑹𝑺𝑽𝑷 𝒂𝒏𝒅 𝒂𝒔𝒌 𝑶𝒖𝒓 𝑬𝒙𝒑𝒆𝒓𝒕, 𝑫𝒓. 𝑫𝒂𝒗𝒊𝒅 𝑺𝒂𝒑𝒆𝒓𝒔𝒕𝒆𝒊𝒏
– FREE EVENT
– Must RSVP to get Virtual Link
– LIMITED TICKETS AVAILABLE
(to ensure Dr. Saperstein has time to answer questions)
When: April 22, 2023 📌
Time: 10:00am – 11:00am (Arizona time)⏰
Where: Virtual📍
Event Registration:✍️ RSVP Now!
The POTScast – Standing Up To POTS
Dr. Saperstein had the pleasure of being interviewed on the Standing Up To POTS – POTScast with host, Jill Brooke, MA. on Wednesday, July 6, 2022.
On the podcast, they discussed POTS (postural orthostatic tachycardia syndrome), Long Covid, autonomic dysfunction, SFN (small fiber neuropathy), and EDS (Ehlers-Danlos Syndrome).
Listen to the full podcast – E90: POTS, Small Fiber Neuropathy, and Mystery Symptoms with Dr. David Saperstein now.
https://bit.ly/POTScast-Episode90
EPISODE 20: THE BENDY BRAIN WITH DR. DAVID SAPERSTEIN
Welcome to episode 3 of the “Neuroscience series” on the “Love at First Science” Podcast where Dr. Saperstein and Celest Pereira dive into the yet unknown world of Hypermobility and talk about Hypochondria and Hypermobility, what influences Hypermobility, Dysautonomia symptoms, Anxiety and Hypermobility and much more!
Dr. Saperstein was the 2021 recipient of the Community Choice Award for Healthcare Professionals from The Ehlers-Danlos Society. Being recognized this way was a huge honor and you will see the plaque displayed in the office upon your visit.